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  1. #1
    RIP 2013 Rolf's Avatar
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    Help for my friend

    Hi all.

    I know this isn't the right forum for this. It belongs in the "Off Topic". But, as I know not many of you read the "Off Topic", I place it here.

    The reason is that a very good friend of mine have for some years a tumor on his brain. So far it has been "of", keeping it steady with cytotoxic drug.

    Lately he experienced some strange things, and on September the 19th, after tests he got the message that the tumor has increased by about 10mm, and had changed from "good" to "bad" ... that is cancer.

    As I know there is hospitals in the US that can do more than hospitals in Norway, my question is:

    Can any of you LHF members recommend anything? Hospitals, doctors ... what ever that can help my friend. He is only a year older than me. (57)

    Any help will be appreciated.

  2. #2
    Moderator hjames's Avatar
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    I don't know if this will help your friend, but author and science writer Jerry Pournelle just went through a similar occurance with an inoperable brain tumor that he had worked over through targetted radiation therapy ...

    "For those who don't know, I get Zapped with hard X-Rays daily at noon. They are burning out some growth near Broca's Area (extremely inoperable). Scans of the rest of me show it is unique: I don't have multiple myeloma that metastasized, and they can't get a biopsy so they are killing this thing on the grounds that it don't belong there even if they don't know what it is."

    His weblog is a mess to wade through - but he blogged the whole process
    starting around Feb or so through the end of the summer (2008)
    Start around here where he is learning about and getting medical test ...
    http://www.jerrypournelle.com/view/view505.html

    I believe he had Kaiser Permanente out around LA

    Prayer for your friend!

    Quote Originally Posted by Rolf View Post
    Hi all.

    I know this isn't the right forum for this. It belongs in the "Off Topic". But, as I know not many of you read the "Off Topic", I place it here.

    The reason is that a very good friend of mine have for some years a tumor on his brain. So far it has been "of", keeping it steady with cytotoxic drug.

    Lately he experienced some strange things, and on September the 19th, after tests he got the message that the tumor has increased by about 10mm, and had changed from "good" to "bad" ... that is cancer.

    As I know there is hospitals in the US that can do more than hospitals in Norway, my question is:

    Can any of you LHF members recommend anything? Hospitals, doctors ... what ever that can help my friend. He is only a year older than me. (57)

    Any help will be appreciated.
    2ch: WiiM Pro; Topping E30 II DAC; Oppo, Acurus RL-11, Acurus A200, JBL Dynamics Project - Offline: L212-TwinStack, VonSchweikert VR-4
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  3. #3
    RIP 2013 Rolf's Avatar
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    Thanks for the fast reply hjamens. I will wait for more replies before I do something.

  4. #4
    Senior Member BMWCCA's Avatar
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    Our little University of Virginia Hospital has operated on many people with tumors from around the world using gamma-knife surgery as well as targeted radiation. http://www.healthsystem.virginia.edu...tment/surgery/

    It's not the only place that does this kind of thing. The trick is not to simply trust the first diagnosis especially if they say the cancer is inoperable. I have many friends alive today because they didn't take the advice of their health-maintenance-organization's physician and sought out the best surgeon in the field of their particular cancer. But then I, myself, was raised as a Christian Scientist. I just haven't been "tested" yet. Regardless, a positive attitude is paramount.

  5. #5
    Senior Member Doc Mark's Avatar
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    Hello, Rolf,

    At the current time, we have 6 different family members and friends, who are undergoing treatment for various cancers. One had a brain tumor, and went through operations, chemo, and radiation. So far, knock wood, he's doing quite well, though full recovery takes a while to come around. We will offer up some prayers for your friend, as we do for our own family and friends who are undergoing similar things. If you would like, please let me know his first name, and I will include your friend in my nightly prayers. Best of luck to him in this fight. Please tell him not to give up, no matter what!! We have one very good friend, who was told he had less then 6 months to live, back in the early 1980's. He had testicular cancer. They removed his testicles, but the cancer had spread, and grew into a tumor the size of a can of Coke, which was attached to his heart and lungs. They opened him up, armpit-to bellybutton-to armpit, and removed the tumor, then told him it was moving too fast, and that there was nothing they could do for him. He told them to continue fighting for him, and to give him every single thing they could, even if they thought there was no chance. Interestingly enough, after all his operations, chemo, and radiation, he was cancer-free, and remains so to this very day!!! He is a very religious fellow, and part of what he thought to be his "payback" to God for helping to save him, was to run a cancer camp for terminally ill children, at his own expense. He's been doing that for years, and tells all the kids, "Hey, there is no guarantee that you will make it. But, look at me (as he shows them photos of himself at his very worst points)! I was told there was NO HOPE, and I am still here!!! Keep fighting, and do everything you can to help the doctors in their fight, too, and you just may beat this thing, just like I did"!! I'm so proud of him, I could just shout!!!

    Take care, and God Bless your friend, Rolf!

    Every Good Wish,
    Doc
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  6. #6
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    Hi Rolf,

    So sorry to hear of your friend's health problems. There are two cancer centers in the US I could recommend.

    On the East Coast, Memorial Sloan-Kettering is a world reknowned center of excellence. You can find out information here:

    http://www.mskcc.org/mskcc/html/44.cfm

    On the West Coast, City of Hope here in Southern California is also a world class cancer treatment center. You can find information here:

    http://www.cityofhope.org/

    The difficult issue will be covering the cost of the evaluation and treatment if your friend does not have health insurance that will cover outside of his home country. But I suppose at this point, cost is a secondary issue.

    Good Luck and best wishes for a positive outcome.

    Regards,

    Bart
    When faced with another JBL find, Good mech986 says , JBL Fan mech986 says

  7. #7
    Senior Member JBLRaiser's Avatar
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    Heather dear, I hope you were quoting

    Quote Originally Posted by hjames View Post
    I don't know if this will help your friend, but author and science writer Jerry Pournelle just went through a similar occurance with an inoperable brain tumor that he had worked over through targetted radiation therapy ...

    "For those who don't know, I get Zapped with hard X-Rays daily at noon. They are burning out some growth near Broca's Area (extremely inoperable). Scans of the rest of me show it is unique: I don't have multiple myeloma that metastasized, and they can't get a biopsy so they are killing this thing on the grounds that it don't belong there even if they don't know what it is."

    His weblog is a mess to wade through - but he blogged the whole process
    starting around Feb or so through the end of the summer (2008)
    Start around here where he is learning about and getting medical test ...
    http://www.jerrypournelle.com/view/view505.html

    I believe he had Kaiser Permanente out around LA

    Prayer for your friend!
    Jerry Pournelle in your post.
    William

  8. #8
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    Quote Originally Posted by hjames View Post
    .
    .
    I believe he had Kaiser Permanente out around LA

    Prayer for your friend!
    Kaiser doesn't treat extremely serious illnesses, they contract to other facilities. One of the hospitals that Kaiser contracts through is City of Hope in Duarte Calif. It is about 15 miles east of Los Angeles. I highly recommend them.

    I donate platelets to the City of Hope for their patients every two weeks.

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